Archive for the 'CCFA' Category

18 May 07

Say a little prayer…

If you’re the prayin’ kind…..Please add my son Josh to your prayer list if you have time.

For those of you who don’t already know…he was diagnosed on his 3rd bday with Ulcerative Colitis, which is an Inflatory Bowel Disease, typically found it adults 35+.

We’ve had it undercontrol for about 15 mo. w/ daily meds, after fighting it for about 6 months from his dx, but now it looks like things are flaring up again! :( So today we’ll be off for a battery of blood work and other “studies”….if they can’t get it undercontrol quickly we might be admitted back into Children’s Hospital. *sigh* 

So please say a little prayer….i know you don’t know him, but he’s one of those people who you would fall in love with immediately…he has a loving, infections personality that EVERYONE loves! :)

Have a wonderful weekend!
xoxoox

Posted by Lauren in CCFA
13 Mar 07

IBD Research Enhancement Act introduced in Congress

Some of you know that my son, Josh, was diagnosed on his 3rd birthday with Ulcerative Colitis (which is an inflammatory bowel disease). I’m a huge advocate for the Crohns & Colitis Foundation of America (CCFA) and feel it’s so important to spread the word about these diseases because the more we openly talk about them the more chances of funding for research and hopefully a cure.

 Anyway, I got this email today and had to share….
“H.R. 1113 proposes to greatly introduce research funding to key institutions, with a particular emphasis on pediatric research. You can make a big difference in this effort by e-mailing or faxing your legislators, telling them how important this issue is to you. ”

HOW YOU CAN HELP
Please contact your member of the House of Representatives and ask them to co-sponsor H.R. 1113, the “Inflammatory Bowel Disease Research Enhancement Act.”  

You can get all the details here:
http://www.ccfa.org/advocacy/currentactivities?LMI=7.1&msource=HQ0703DMENWS&tr=y&auid=2446123

xooxox

Posted by Lauren in CCFA

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